Patient Registry
Community Registry
Real data from real women. Every entry represents someone who chose to share their journey to help others.
3
Registry entries
1
Countries
3
Surgeons documented
2
Live births after repair
🔒 All entries shared with explicit consent. Names shown only when submitter chose "Use my name." Contact methods are shown only when a submitter opted into patient contact.
Filter Registry
LK
Lisa Kucer· California, United States· Diagnosed 2022
✓ Live Birth1x repaired
LK
Lisa Kucera· California, United States· Diagnosed 2024
1x repaired
KF
Karen Floyd· NJ, United States· Diagnosed 2023
✓ Live Birth2x repaired⚠ Critical RMT
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If you've had a new repair, a pregnancy, a birth, a loss, or any major update since submitting your story, please email hello@thenicheproject.org so we can keep the registry as accurate and helpful as possible.