Patient Registry
Community Registry
Real data from real women. Every entry represents someone who chose to share their journey to help others.
6
Registry entries
1
Countries
3
Surgeons documented
2
Live births after repair
🔒 All entries shared with explicit consent. Names shown only when submitter chose "Use my name." Contact info never displayed publicly.
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KF
Karen Floyd· New Jersey, USA· Diagnosed 2023
✓ Live Birth2x repaired⚠ Critical RMT
LG
Lisa Gavin Kucera· California, USA· Diagnosed 2022
✓ Live Birth1x repaired
B
Brenna· Pennsylvania, USA· Diagnosed 2024
♥ Loss⚠ CSEP1x repairedLow RMT
RD
Rachel Durbin· Illinois, USA· Diagnosed 2024
2x repairedLow RMT
LD
Lindsay Dabbelt· Ohio, USA· Diagnosed 2024
🤰 Ongoing Pregnancy⚠ CSEP1x repaired
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If you've had a new repair, a pregnancy, a birth, a loss, or any major update since submitting your story, please email hello@thenicheproject.org so we can keep the registry as accurate and helpful as possible.