You Are Not Alone in This.

The Niche Project is a patient-led registry and resource hub for women navigating isthmocele — from first suspicion to diagnosis, repair, and beyond.

Share Your Story Explore the Registry

Built by patients.
For patients.

When Karen Floyd received her isthmocele diagnosis after years of unexplained infertility and repeated loss, she found a community of women navigating the same confusion, grief, and determination.

But she also found a gap — scattered information, no centralized data, and too few surgeons who truly understood the condition.

The Niche Project exists to change that. We’re building the largest patient-driven isthmocele registry in the world — so the next woman gets diagnosed faster, finds the right care, and feels less alone.

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“Finally, a name for what was wrong.”

— Karen Floyd, founder

Everything you need, in one place.

From understanding your diagnosis to finding a specialist — we’ve got you covered.

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Get Informed

Learn what an isthmocele is, how it’s diagnosed, what treatments exist, and what to ask your doctor. Clear answers, plain language.

Learn more →
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Find a Surgeon

Browse our community-sourced directory of surgeons experienced in isthmocele repair — including specialty, location, and patient outcomes.

View directory →
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Share Your Story

Your journey matters. Add your experience to our registry and help researchers, doctors, and future patients understand this condition better.

Submit your story →

Real women. Real data.

7
Women in our registry
4
Countries represented
3
Repair types documented
100%
Willing to help others

Every submission helps the next woman get diagnosed faster.

Why This Exists

Four years. Two repairs. One miracle named Gracie Rose.

After four years of unexplained infertility, a miscarriages, and a failed first repair, Karen Floyd finally found answers — and a surgeon who could help. This site is her way of making sure the next woman doesn’t have to search as long, hurt as much, or feel as alone.

Read Karen’s Story

You don’t have to figure this out alone.

Connect with thousands of women in our Facebook support group who are living with or recovering from isthmocele. Ask questions, share experiences, find hope.

Join the Facebook Group
The Niche Project is a patient-led resource and does not provide medical advice. Always consult a qualified healthcare provider for diagnosis and treatment decisions.