YouAreNotAlone
in This.
The Niche Project is a patient-led registry and resource hub for women navigating an isthmocele diagnosis — from first suspicion to repair, and beyond.
Built by patients.
For patients.
When Karen Floyd finally learned she had an isthmocele, she also learned how many women were living with the same pain, infertility, and confusion — often without ever hearing the word for what was happening to them.
She found support in the stories of other women, but she also found huge gaps: scattered information, little awareness, and not enough clear guidance for patients trying to advocate for themselves.
The Niche Project exists to change that — to turn years of unanswered questions into something useful, compassionate, and easier for the next woman to find.
“Finally, a name for what was wrong.”
— Karen Floyd, founder
Everything you need, in one place.
From understanding your diagnosis to finding a specialist — we've got you covered.
Real women. Real data.
Every submission helps the next woman get diagnosed faster.
From women who've been there.
Real stories from women like you. Every entry helps the next one get diagnosed faster.
🌸 “Finally had a name for what was wrong.”
— Anonymous, USA
🌸 “My doctor had never heard of it. The registry helped me find someone who had.”
— Registered patient, UK
🌸 “After my second c-section, I knew something was different. Four years to get diagnosed.”
— Karen, founder
🌸 “I found my surgeon through this community.”
— Registered patient, Australia
🌸 “Finally had a name for what was wrong.”
— Anonymous, USA
🌸 “My doctor had never heard of it. The registry helped me find someone who had.”
— Registered patient, UK
🌸 “After my second c-section, I knew something was different. Four years to get diagnosed.”
— Karen, founder
🌸 “I found my surgeon through this community.”
— Registered patient, Australia
🌸 “The spotting after every period was dismissed for 3 years.”
— Anonymous, Canada
🌸 “I didn't know RMT was something I should be asking about.”
— Registered patient, USA
🌸 “This site is what I needed when I was first diagnosed.”
— Anonymous, New Zealand
🌸 “My repair failed. Finding others with the same experience helped.”
— Registered patient, USA
🌸 “The spotting after every period was dismissed for 3 years.”
— Anonymous, Canada
🌸 “I didn't know RMT was something I should be asking about.”
— Registered patient, USA
🌸 “This site is what I needed when I was first diagnosed.”
— Anonymous, New Zealand
🌸 “My repair failed. Finding others with the same experience helped.”
— Registered patient, USA
🌸 “I flew across the country for my second repair. It was worth it.”
— Registered patient, USA
🌸 “Two years of failed IVF before anyone looked at my scar.”
— Anonymous, Germany
🌸 “The 6-step form helped me realize how much I'd been through.”
— Registered patient, Ireland
🌸 “I didn't know isthmocele could cause implantation failure.”
— Anonymous, USA
🌸 “I flew across the country for my second repair. It was worth it.”
— Registered patient, USA
🌸 “Two years of failed IVF before anyone looked at my scar.”
— Anonymous, Germany
🌸 “The 6-step form helped me realize how much I'd been through.”
— Registered patient, Ireland
🌸 “I didn't know isthmocele could cause implantation failure.”
— Anonymous, USA
Why This Exists
Four years. Two repairs. One miracle.
After one c-section and one VBAC, Karen developed an isthmocele that led to years of unexplained secondary infertility, loss, delayed diagnosis, and two surgeries before finally finding a path forward. This site exists so the next woman gets answers sooner.
Read Karen's StoryYou don't have to figure this out alone.
Connect with thousands of women in our Facebook support group who are living with or recovering from isthmocele. Ask questions, share experiences, find hope.
Join the Facebook Group